possible effects on the health of the family members

In general ill parents produced less spillover than other types of ill relatives, perhaps due to expectation that creates a type of anticipatory adaptation to ameliorate spillover effects, or simply that elderly parents life spans are shorter even when ill so the spillover effects of illness are time-limited. [1,2] These spillover effects of illness affect many aspects of family members lives, from physical and emotional health to quality of life and well-being. Family members are affected by the patient's disability, and, many times, become co-managers of the patient's care. The associated costs create an even bigger financial problem. They may even provide the Addict with money for drugs and alcohol to appease him or her. What do people value when they provide unpaid care for an older person? The most common mental illnesses are anxiety disorders and depression. Feelings of resentment toward patients were absent in reports from relatives of patients with cancer and cerebral palsy, while these feelings were present for some family members of patients with all other conditions in our sample. Family members are also affected by your disability. [2,11] Such is the case of children with ill parents who are not caretakers but are nevertheless affected by the illness. 5. disease-causing bacterial - it causes weakening your body and make you sick cholera - is a serious bacterial disease that can cause severe diarrhea and dehydration. Relationship Problems. Marriage is very difficult. But at the end of the day, you should still treat each other with love and kindness. Nekouei M, Firoozfar A, Kheirabadi D, Baradaran Mahdavi S, Talebi A, Danesh M, Yahay M, Rahimi M, Golshani L, Kheirabadi GR, Hashemipour M. Int J Prev Med. Symptoms include feeling tired, slowed movement, and weight gain. Once a user sees how addiction and family are related, theyll be more likely to make a positive change in their lives. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institute of Nursing Research or the National Institutes of Health. It is difficult to see people we love in pain. Make sure that your family knows the signs of hypoglycemia, or low blood sugar. Abuse and addiction can become a deadly cycle that can only be broken by treatment. Implications for further research: We intentionally included individuals with family members with disabling conditions that might be expected to require physical assistance from caregivers, as well as conditions that were not associated with substantial physical caretaking but that we expected to be relatively more mentally and emotionally taxing on family members. Exploring popular walking tracks in your city on the weekends. As a result, they wont meet the needs of their child. These diseases can lead to reduced respiratory function and death. If you have a loved one with early- to mid-stage memory loss, you know how challenging it can be to provide the care that's needed while trying to maintain balance in your life. Shes more a part of my life now than when she was. Existing instruments include scales for caregiver-experienced conditions (e.g., sleep disorders [17]), caregiver strain[18], hassle[19], and burden[20], and more general measures such as caregiver quality of life[21] and health state utility. Family therapy is one of the many aftercare treatments offered at Discovery Institute. A meta-ethnography with interview follow-up. Abstract. Adults with ill children (n=9) were most consistent in the domains that they reported affected by spillover compared with other relationship categories. I kinda can feel his pain and I can understand him better because I know whats wrong with him.. Al-Janabi H, Coast J, Flynn TN. Christakis NA. Asbestos fibres are easily inhaled and carried into the lower regions of the lung where they can cause fibrotic lung disease (asbestosis) and changes in the lining of the chest cavity (pleura). Each partner may have different emotional needs that change frequently. The feelings, fears and reactions may feel out of control, embarrassing, or conflicting, but they are completely legitimate and understandable. The internet survey sample totaled 1,389, of whom 543 volunteered to be interviewed (Figure 1). Many addicts dont want to stop using, and this can cause resentment and anger among family members. With everyone acting out of character, physical abuse may start occurring on top of the pre-existing emotional abuse. Perkins M, Howard VJ, Wadley VG, et al. sharing sensitive information, make sure youre on a federal Severe injury, chronic disease, or disability may mean a change in family roles. Children who regularly eat meals with their families are more likely to have physical and mental health benefits over the long term, including better fitness levels and social skills, along with lower levels of depression. One of the serious effects of Down Syndrome is approximately one-half of babies born with Down's have heart defect. 2005 Jun;8(2):71-81. A potential effect of ill health of a child on parents/carers is that parents/carers may feel isolated and feel like they have loss of control to their child's illness and life. The Hero (usually the oldest child) is an overachiever who is hardworking and typically earns straight As in school. However many people overlook the effect of a family history on health outcomes. We are experimenting with display styles that make it easier to read articles in PMC. The site is secure. The purpose of this study was to identify the domains of family members health and well-being that are affected when a relative has a chronic health condition. Women tend to engage in risky sexual behavior, and men tend to become physically abusive toward their own families. 2002 Jul-Sep;25(3):167-88. doi: 10.1080/01460860290042558. Like a bully, the mental illness bosses the primary sufferer as well as the loved ones. As family members, you can also better understand what your addicted loved one is going through, as well as observe the patterns and experiences that may have led them to substance abuse. Ensuring you are informed about your family history could allow you to better understand these types of risks for you. Modern psychology defines dysfunctional families as those with anxious systems within them. Family life . Most respondents (76%) lived in the same household as their ill family member; nearly all adolescents lived with their ill parent (88%). If this becomes a trend, the child will have a hard time forming bonds with other people since they dont know how to trust. Let us help you find the best treatment for you and your family members. Discussion: The spouse of an Alzheimers disease patient reacted to her spouses dependency with an increased focus on her own well-being; she said: Across conditions, at least some respondents reported spillover effects decreasing over time. They also try to convey a sense of normalcy in the family and feel the need to take on more and more responsibility. Anger and rage Memory loss caused by Alzheimer's disease, dementia or another form of memory impairment doesn't only affect the person who has it - it affects the entire family. However, whilst the influence of poor mental health on families is largely misunderstood, the consequences are extremely apparent to those actually suffering from mental illness. A mother of a child with cerebral palsy described: Well, if nobody happens to be here its kind of hard for me to get out because, like I said, I cant lift him anymore. JAMA : the journal of the American Medical Association. Carnevale FA, Alexander E, Davis M, Rennick J, Troini R. Pediatrics. Most notable in our findings was the breadth of areas of life and individuals affected by having an ill relative. The effects of the other chronic conditions studied, while not as significant, are notable in that their negative impacts on the psychological health of family members are sometimes larger than their direct psychological impacts on the patient. Financing an addiction isnt cheap. Our goal was to improve medical decision making by improving our understanding of the reach of illness, and through this understanding, to inform measurement of these outcomes for inclusion in decisions. Caregiving or simply being in the presence of an ill relative often resulted in changed attention to ones own health, either decreased attention because of the burden of caregiving or heightened attention because of witnessing ill health. Basu A, Meltzer D. Implications of spillover effects within the family for medical cost-effectiveness analysis. The study was approved by the applicable Human Subjects Committees. Our sample included both caregiving and non-caregiving family members as we were interested in the differences in spillover effects between these two groups. Disutility of illness for caregivers and families: a systematic review of the literature. This irresponsibility ranges from not taking care of basic needs, such as providing meals and keeping the child clean, to secondary needs like ensuring their child is getting an education and social life. More illuminating to us was the depth of spillover reported by individuals whose family members had depression. The health impact was common across the three specific illnesses, both in high/low-income countries11 34 39 47 and it is long-term and trans-generational.24 25 33 64 Psychological distress and physical complaints in family members can be explained by stressful family environment and high demand for care by the people with the illness.23 34 48 . Sadness or grief would be a normal response. All internet survey respondents were queried at the end of the on-line instrument about participating in a follow-up interview survey. Most respondents in both groups of family members reported effects on their general emotional health and general daily activities. 2019 Sep;59(8):1286-1299. doi: 10.1111/head.13613. In a bid to avoid physical or emotional abuse, family members might begin walking on eggshells to appease their addicted loved one. 808 certified writers online. Stress in families with medically fragile children. A toxic family member might . Compared with all other relationship types, adolescents with ill parents reported the fewest domains affected . Outcomes measurement efforts should be expanded to adequately capture these health and well-being outcomes for analysis, to ensure that the benefits of interventions are accurately estimated and conclusions are valid. This behavior masks the Enablers inner feelings of betrayal, anger and hurt which the Addict has caused. There are fees for lawyers, hospital or ER bills, court fees, medication costs, and possible time spent in prison. . Positive spillover effects were also described by spouses, including an increased focus on ones own well-being and improved relationships. Lisa A. Prosser, Child Health Evaluation and Research Unit, Division of General Pediatrics, University of Michigan Health System, 300 North Ingalls 6E14, Ann Arbor, MI, 48109. Its important for family members of addicts to have plenty of support during this time of recovery, which is why we also provide resources and support. We wouldnt know what to do without him., I mean, hes got to have 24-hour carethis is my life.. This could be through enhancing feelings of togetherness, support and belonging. This presents itself with cold sweat, pale or washed-out skin, irritability, hunger, heart palpitations, confusion, fatigue, and eventually loss of consciousness or seizures. Higher income and education may provide family members with more knowledge of good health habits and better access to health and preventive services. Qualitative data analysis for health services research: developing taxonomy, themes and theory. It's easy to become resentful, and the reality is that dementia can cause extreme stress for families. Worldwide, at least 25% of persons and their families are affected by mental illness resulting in significant stress and burden; yet little is known about how the illness affects quality of family life. Transcripts were coded for spillover domains mentioned. PTSD makes it hard to do everyday things and this may lead to unmet family needs. Davidson T, Krevers B, Levin LA. There was somewhat more worry and fear reported by non-caregivers, and less stress/anxiety and sadness/depression. Even if the child doesnt end up abusing substances, growing up in such an environment will compromise their emotional and mental health. After refusals and other exclusions, interviews were completed with 41 adults and 8 adolescents. Before Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives. Patient. Would you like email updates of new search results? You have to address issues of food preparation, meals, cleaning, bedding, transportation. Center for Health Decision Science, Harvard School of Public Health, 718 Huntington Ave., Boston, MA, 02115, Child Health Evaluation and Research Unit, Division of General Pediatrics, University of Michigan Health System, 300 North Ingalls 6E14, Ann Arbor, MI, 48109, Sample characteristics (n=49; 41 adults and 8 adolescents), Respondents characteristics by ill persons condition and relationship to respondent (n=49; 41 adults and 8 adolescents), Domains affected by spillover, by relationship of ill person to respondent (n=49), Domains affected by spillover, by ill persons condition (n=49), Domains affected by spillover, by respondent caregiver status (n=41a), How illness affects family members: a qualitative interview survey. The potential clinical relevance of the resulting findings underlies the need for additional data collection efforts that, like the MEPS, consider individuals in a family context. During the acute episode family members will be alarmed by what is happening to their loved one. When a family member is struggling with substance abuse, he or she is supported by several relatives. Those who were not the primary caregivers still reported caretaking responsibilities. Within each condition/relationship combination category (excluding those unrepresented in the on-line sample: child with arthritis or Alzheimers disease/dementia, parent and spouse with cerebral palsy), up to 16 volunteers were randomly selected from those who provided a valid telephone number and a time to call that fell within the interview period (some volunteers indicated specific days that had passed before interviews began). Make sure that your family knows these signs and how to address them in case they do occur. Akyirem S, Salifu Y, Bayuo J, Duodu PA, Bossman IF, Abboah-Offei M. Nurs Open. Our sample included respondents with depressed children, spouses and parents, who nearly uniformly emphasized the severe repercussions the relatives illness had on them. J Ment Health Policy Econ. Brouwer WBF. First is a physical abnormality. This finding suggests an interdependence between the patient and family members outcomes that may be difficult to disentangle and therefore even more important to capture together for a full rendering of outcomes. This will impact their self-confidence, health, and social development. Bethesda, MD 20894, Web Policies Emotional issues - Family members develop emotional issues because of the drug abuse. For over 40 years, The Discovery Institute has been helping families in New Jersey and beyond to make successful recoveries from addictions. Frustration. Results: Its time to get your family back to a healthy place. 2020 Apr;109(4):790-800. doi: 10.1111/apa.15054. Kinney JM, Stephens MA. 2019 Dec 5;17(1):178. doi: 10.1186/s12955-019-1252-4. Those surveyed by Priory reported that their emotions and behaviour put "extra stress" on their family, with one patient reporting that: "my addiction affected . Spouses of patients reported the broadest range of spillover domains affected and adolescents of ill parents the fewest. 2005 Sep;19(3):186-95. doi: 10.1111/j.1471-6712.2005.00340.x. On the positive side, a boy whose father had skin cancer reported increased attention to self-care (motivation to use sunscreen) because of his fathers diagnosis. Sexual intimacy was reported only by respondents whose spouses had cancer. Interviews averaged 26 minutes in length (range: 14 to 44). the display of certain parts of an article in other eReaders. We examine the impact of a person's chronic illness on the psychological health of all persons in his or her family and identify both individual and family-level risk factors associated with psychological spillovers. Our results may guide future development and use of instruments to capture the far-reaching effects of illness on family members and their incorporation into outcomes research. This work was supported by grant number 7R01NR011880 from the National Institute of Nursing Research to EW. Depression. Northouse L, Mood D, Montie J, et al. The Hero acts like this to cover up the guilt, inadequacy, anxiety and stress theyre feeling inside. The interview guide was refined through pre-testing prior to administration. Most of these individuals would preferably cause their bodies to feel physical pain, to disregard the emotional pain they are feeling, and they also believe this is a strong way to accept what happened. Results suggest that, of the chronic conditions considered, priority for respite care and supportive services should be given to families in which a member has a brain-related disorder, particularly in families with limited financial resources and inadequate insurance coverage. Effects in these domains were also perceived as negative by respondents. Understanding your familys health history gives you a great starting point for protecting and maintaining good health. and transmitted securely. In particular, parents of children with cerebral palsy reported more effects on physical health (Table 4). As part of an internet survey measuring spillover disutility of chronic conditions[25], semi-structured telephone interviews were conducted in February, 2012 with a subset of survey respondent volunteers. These positive relationships are associated with a lower likelihood of death and even health benefits like faster wound healing. While current recommendations endorse the inclusion of informal care in economic evaluation[31], few studies in fact include caregiver outcomes both because of challenges in measurement[1], and because of a slowly emerging consensus that such benefits are appropriately included. Since family caregiving became a widely studied topic in the early 1980s, most research has emphasized caregiving burden and the potential negative effects of caregiving stress on mental and physical health. In the throes of their addiction, the addict is likely going to leave all the responsibilities to their partner. Eve Wittenberg, Center for Health Decision Science, Harvard School of Public Health, 718 Huntington Ave., Boston, MA, 02115. Some family members may work so hard to help loved ones, they neglect to look after themselves. Subjects were asked open-ended questions about what it is like to have an ill family member, what sorts of things [they] think about, what aspects of their lives were affected and how, whether effects changed over time, and if/how other family members were affected. Chronic illness in a family member can cause emotional distress throughout the family, and may impair the family's ability to support the patient. Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Spillover of illness onto family members encompasses a wide range of domains of health and well-being, extending beyond those included in many existing health-related quality of life measures. This is not only depleting their finances; its also making the addict think that their family members will always be around to finance their fix. Partners and children may feel more stress and talking to one another may be tough. Emotions impact each person to different extents, but it's normal to feel any or all of the following emotions: Guilt. Poverty is a complex and insidious determinant of health caused by systemic factors that can persist for generations in a family. Those who agreed were asked to supply a first name, telephone number and good time to call. Find the right plan by using our tool now. However, by seeking treatment for the addict and counseling for the entire family, affected families will have a better chance of rebuilding their lives and relationships. Respondents mean age was 47.1 years (range: 14 to 86; Table 1); adolescent respondents were between 14 and 16 years of age. The spouse of an Alzheimers patient described sadness and depression: Im alone, Im alone in thisI feel like Im in a sink-hole and its just like my life is spiraling down.. What actually happened? In this event, a trip to your medical provider is indicated. The patient's family plays a vital part in the rehabilitation process. None of the adolescent respondents reported somatic effects from their parents illness. After that happens, they'll turn to their savings to quench their addiction. Respondents who reported being the primary caregiver for the ill relative reported mainly similar effects on their health and well-being as did family members who were not the primary caregivers (Table 5). Scapegoats end up getting blamed for the family problems, and they often resent the Addict for putting them in this position. The chronic conditions considered include cancer, diabetes, stroke-related disorders, arthritis, asthma, and mental illness (including dementia). Similar to caring for someone with a serious physical illness, living with someone with PTSD can be draining emotionally. Prompts were used to explore comments offered, and, if needed to encourage talking, to ask about effects identified in the literature (such as health, daily activities, finances[1,11,2628]). PTSD can disrupt many of your household routines. It can negatively impact your psychological and physical health and can heap a great financial burden. Al-Janabi H, Flynn TN, Coast J. QALYs and carers. As much as addiction can affect the user, it can emotionally impact his or her family even more. Intelligence Quotient, Anxiety, and Depression in Congenital Hypothyroid Children at School Age. Moreover, our results confirm that spillover effects are quite nuanced, mixing burden with purpose, such as the mother whose life becomes defined by taking care of her child. Addicts can be the perpetrators of abuse, but their vulnerability also puts them at risk of becoming victims of it, too. They tend to engage in high-risk behaviors including drug and alcohol use and/or suicide attempts, especially those youth who may be significantly depressed because they are shunned or marginalized. Prior research on family spillover effects of illness has shown that caregivers experience increased mortality risk, with findings often suggesting an association between caregiver strain and negative outcomes. You never know how theyll react to a situation. Because psychological distress is fairly contagious in families confronted with chronic illness, effective treatment strategies may need to be targeted to all members of the primary patient's family. 2. Brouwer WB, van Exel NJ, van de Berg B, Dinant HJ, Koopmanschap MA, van den Bos GA. There are two major factors why can a person with dementia act or show aggression. The individual who has just been diagnosed with an illnesssuch as depression, bipolar disorder or anxietyhas had his or her world changed (at least temporarily, though the effects can last much. corresponding author: phone: 617-432-6933, fax: 617-432-0190, The publisher's final edited version of this article is available at, Domains affected by spillover, by respondent caregiver status (n=41. On the other hand, the manipulation, deceit, and other forms of emotional abuse that the addict throws their way daily is a cause of pain and frustration in the family. [8,9] Contradictory evidence, however, suggests positive, even life-extending benefits from caring for an ill relative. Documentation of disease-specific effects have generally focused on measurement of caregiver burden (e.g., arthritis[12], Alzheimers disease[13], multiple sclerosis[14], spina bifida[15], stroke[16]). The spouse of an individual with Alzheimers disease reported: [I have] more determination to take care of myself.. AI monitoring in health care settings can trigger two specific technology-induced anxieties experienced by family members: surveillance anxiety and delegation anxiety. Additionally, the substance abuse problem is likely going to cause the individual to lose their job due to poor performance or attendance. Using willingness to pay to measure family members' preferences in mental health. This article will discuss how substance abuse affects the family. Child Health Evaluation and Research Unit, Division of General Pediatrics, University of Michigan Health System, 300 North Ingalls 6E14, Ann Arbor, MI, 48109. It pays to remember that just because you have the same genes doesnt mean youll definitely develop the same diseases. Look for diseases occurring in more than one close relative. Methods: Psychological distress is measured using responses to the general mental health question for each family member. document.getElementById( "ak_js_2" ).setAttribute( "value", ( new Date() ).getTime() ); Youre Never Too Old to Get Sober: Resources for the Elderly Addict. If 16 volunteers were not available for a specific condition/relationship combination, all in sample were included (all 25 adolescent volunteers were included in interview sample). Individual family members may feel less attached or involved with one another. Anmelden, Interdisciplinary collaboration, patient education. Interviews were conducted in English by a professional interviewer, audio-recorded, and transcribed for analysis. Patient. Schulz R, Beach SR. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. Adult respondents with ill spouses (n=16) reported experiencing every domain of spillover mentioned within the sample responses. Financial Strain The effects of drug addiction don't only impact children emotionally and physically. Dementia changes relationships and can cause you and your family members to become socially isolated. Caring for and caring about: disentangling the caregiver effect and the family effect. Abuse tied to alcoholism can be either emotional or physical in nature. In addition to making the addict irrational, their substance abuse is also likely to put everyone around them on edge. Addiction is a disease that affects not only an individuals physiological well being but their psychological and emotional states as well. Academic problems Anxiety and depression Poor emotional development Difficulty with intimate relationships as adults A tendency to be dishonest 3. Save my name, email, and website in this browser for the next time I comment. Quality of life and emotional burden of primary caregivers: a case-control study of multiple sclerosis patients in Greece. Prioritising the eating of healthy meals together can reinforce healthful values in the younger generation. Your family can have a powerful impact on your individual health. We estimate the relationships of interest using a semi-parametric method, the discrete random effects probit model. Caregiving behavior is associated with decreased mortality risk. [29,30] Two investigators (EW and AS) read the transcripts to identify the full range of domains and categories of spillover mentioned by respondents. Embarrassment. We further explored the variation in this experience by the type of condition the family member had and the relationship between the two family members. Hearson B, McClement S. Sleep disturbance in family caregivers of patients with advanced cancer. A parent's preoccupation with getting drunk or high can lead to neglect or abuse. Burden of caregiving: evidence of objective burden, subjective burden, and quality of life impacts on informal caregivers of patients with rheumatoid arthritis. There is a tremendous amount of emotional disturbance within the family members, and it sometimes means that it is coupled with child neglect and abuse . Argyriou AA, Karanasios P, Ifanti AA, et al. This empathy makes them want to provide him or her with support, love, and encouragement. The end result is a culture of fear and confusion which ensures that the household rarely has joy. Effects on emotional health were most commonly reported as psychological spillover; non-health effects frequently included changes in daily activities and provision of caregiving. The spectrum of domains reported by respondents was broadest for non-health domains, including caretaking which was reported frequently by all respondents except adolescents with ill parents (Tables 3 and and4),4), effects on work/job, finances, social activities, church attendance, confinement to home, loss of activities with relative, and self-care (Table 3). Much has been written about the negative impacts of addiction on the user. Foster 1957 classifies family crisis into two types: 1. This chapter examines the multiple and evolving roles of caregivers of older adults and the impact of assuming these roles on caregivers' health and well-being. Why not take some time to think about your family and how they are impacting your health. Most of the care that mental health sufferers often rely on is from family, so when family members deny this support, the recovery process can be negatively affected. Adults with ill children had the longest duration of living with the illness in the family, at a mean of nearly 11 years. Stress Causes Depression in the Family Depression is a major stressor for families: It interferes with relationships between spouses and between parents and their children. Theyre also likely to forget about the promises they make to their children. General daily activities and caretaking were reported as non-health domains affected for all conditions. The spouse of a prostate cancer patient described her feelings: The intimacy is gone. Is it a positive or a negative influence? FOIA Usually the middle or youngest child, the Lost Child is withdrawn and tends to spend time alone. Parent-child relationships can be complex, and if your child is experiencing mental illness, caring for them can be difficult at times. Subjects were queried on whether and how having an ill relative affected their health and well-being; they were also asked about their caregiving responsibilities and the relatives health. EW, AS and LAP each has no conflicts to declare. Prosser LA, Lamarand K, Gebremariam A, Wittenberg E. Measuring family spillover effects using direct health utility assessment: abstract. As scapegoats get older, theyll likely get in trouble with the law. 8600 Rockville Pike Up to 14 percent of youth with mental health disorders receive mostly Ds and Fs, compared to 7 percent for all children with disabilities.3. This loss of trust often results in broken marriages and dysfunctional children. Novak M, Guest C. Application of a multidimensional caregiver burden inventory. Drug abuse can also have severe financial implications. The Theoretical Basis of Patient Education Introduction, Behavioral, cognitive, humanist approaches, Process of Patient Education: Introduction, Providing Age-Appropriate Patient Education, Providing Age-Appropriate Patient Education: Introduction, Impact of Culture on Patient Education: Introduction, Adherence in Patient Education: Introduction, The patient as a passive recipient of care, Effect of interpersonal skills on adherence, Interventions that can increase adherence, Helping Patients Who Have Low Literacy Skills, Helping Patients Who Have Low Literacy Skills: Introduction, Resources for Patient Education: Introduction, Herr Kaiser: Neue Zhne bei ungarischer Zahnklinik fr Mr. International Center of Mental Health Policy and Economics. Below are the types of family therapy we have here at Discovery. Most of these family members were either the child of the carer (58.4%) or their partner (30.6%). Drug abuse usually makes an individuals behavior unpredictable. Our study suggests that the breadth of spillover effects is wide and may include nuanced differences among and between conditions and the relationship between the patient and the affected family member. Instability, separation, divorce and . already built in. The overwhelming emotional effect was described by a mother as: Its hard, its scaryyou think about him 24/7, all the timeits non-stop thinking about him all the time.. Effects of Substance Abuse on Family Structures Background: Caregiving burden was described in varying levels of intensity, with the most extreme resulting in social isolation for the caregiver. 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